Patient and Related Societies
- Alliance For Cancer Gene Therapy (ACGT Foundation)
- Alzheimer Association
- American Association for the Advancement of Science (AAAS)
- American Cancer Society
- American Heart Association
- American Society of Law, Medicine and Ethics
- Association of Genetic Technologists
- Association of Professors of Human or Medical Genetics
- Biotechnology Industry Organization (BIO)
- British Heart Foundation
- Clinical Molecular Genetics Society
- Cooley's Anemia Foundation
- Cystic Fibrosis Foundation
- Cystic Fibrosis Trust
- European Life Sciences Forum (ELSF)
- European Parkinson's Disease Association (EPDA)
- European Patients' Forum (EPF)
- European Society for Animal Cell Technology
- European Society of Human Genetics
- EURORDIS - Rare disease patients in Europe
- Federation of Patients and Consumer Organisations in the Netherlands (NPCF)
- Fanconi Anemia Research Fund, Inc.
- Fight SMA
- Genetic Alliance BioBank
- Human Genetics Society of Australasia
- International Society for Cell Therapy
- International Society for Stem Cell Research
- Mesothelioma Cancer - mesothelioma.net
- Mesothelioma Cancer - mesothelioma.com
- Muscular Dystrophy Association
- Oligonucleotide Therapeutics Society (OTS)
- Parkinson's Disease Foundation
- PatientPartner - European Network of Patients Partnering in Clinical Research
- PatientView
- Society for Molecular Imaging
- Society for the Inherited Metabolic Disorders
- The ALS Association
- The Leukemia & Lymphoma Society
- The Stop ALD Foundation
- United Parent Projects Muscular Dystrophy (UPPMD)
- US National Hemophilia Foundation
- US National Parkinson Foundation
- Williamsburg BioProcessing Foundation
- World Federation of Hemophilia
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